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Anxiety, concerns and COVID-19: Cross-country perspectives from families and individuals with neurodevelopmental conditions

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dc.contributor.authorSideropoulos, Vassilis
dc.contributor.authorHerwegen, Jo Van
dc.contributor.authorMeuleman, Ben
dc.contributor.authorAlessandri, Michael
dc.contributor.authorAlnemary, Faisal M.
dc.contributor.authorAmani Rad, Jamal
dc.contributor.authorBanta Lavenex, Pamela A.
dc.contributor.authorBolshakov, Nikita
dc.contributor.authorBölte, Sven
dc.contributor.authorBuffle, Paulina
dc.contributor.authorCai, Ru Y.
dc.contributor.authorCampos, Ruth
dc.contributor.authorChirita-Emandi, Adela
dc.contributor.authorCosta, Andreia P.
dc.contributor.authorCostanzo, Floriana
dc.contributor.authorPortes, Vincent Des
dc.contributor.authorDukes, Daniel
dc.contributor.authorFaivre, Laurence
dc.contributor.authorFamelart, Nawelle
dc.contributor.authorFisher, Marisa H.
dc.contributor.authorGamaiunova, Liudmilla
dc.contributor.authorGiannadou, Aikaterini
dc.contributor.authorGupta, Rashmi
dc.contributor.authorHardan, Antonio Y.
dc.contributor.authorHoudayer-Robert, Françoise
dc.contributor.authorHrncirova, Lenka
dc.contributor.authorTadeu Iaochite, Roberto
dc.contributor.authorJariabkova, Katarina
dc.contributor.authorKleinTasman, Bonita P.
dc.contributor.authorLavenex, Pierre
dc.contributor.authorMalik, Supriya
dc.contributor.authorMari, Francesca
dc.contributor.authorMartínez Castilla, Pastora
dc.contributor.authorMenghini, Deny
dc.contributor.authorNuske, Heather J.
dc.contributor.authorPalikara, Olympia
dc.contributor.authorPapon, Anouk
dc.contributor.authorPegg, Robin S.
dc.contributor.authorPouretemad, Hamidreza
dc.contributor.authorPoustka, Luise
dc.contributor.authorProsetzky, Ingolf
dc.contributor.authorRenieri, Alessandra
dc.contributor.authorRhodes, Sinead M.
dc.contributor.authorRiby, Deborah M.
dc.contributor.authorRossi, Massimiliano
dc.contributor.authorSadeghi, Saeid
dc.contributor.authorSu, Xueyen
dc.contributor.authorTai, Claire
dc.contributor.authorTran, Michel
dc.contributor.authorTynan, Fionnuala
dc.contributor.authorUljarević, Mirko
dc.contributor.authorHecke, Amy V, Van
dc.contributor.authorVeiga, Guida
dc.contributor.authorVerloes, Alain
dc.contributor.authorVicari, Stefano
dc.contributor.authorWerneck-Rohrer, Sonja G.
dc.contributor.authorZander, Eric
dc.contributor.authorSamson, Andrea C.
dc.contributor.funderSwiss National Science Foundation; UniDistance Suisse; European Federation of Williams Syndrome; IRAN Cognitive Sciences & Technologies Council; Iran National Science Foundation, INSF ; US National Institutes of Health
dc.date.accessioned2025-10-24T12:17:08Z
dc.date.available2025-10-24T12:17:08Z
dc.date.issued2023-07-28
dc.descriptionThe registered version of this article, first published in Journal of Global Health, is available online at the publisher's website: International Society of Global Health, https://doi.org/10.7189/jogh.13.04081
dc.descriptionLa versión registrada de este artículo, publicado por primera vez en Journal of Global Health, está disponible en línea en el sitio web del editor: International Society of Global Health, https://doi.org/10.7189/jogh.13.04081
dc.descriptionWe would like to thank the funders for this study, the Swiss National Science Foundation (PP00P1_176722 for Andrea Samson), UniDistance Suisse, and the European Federation of Williams Syndrome. Finally, Jamal Amani Rad was supported in part by IRAN Cognitive Sciences & Technologies Council (Grant No. 9311) and Iran National Science Foundation, INSF (Grant No. 99010447 and 4003215), and Heather Nuske was supported by a career development award from the US National Institutes of Health (K01MH120509)
dc.description.abstractBackground The COVID-19 pandemic had a major impact on the mental health and well-being of children with neurodevelopmental conditions (NDCs) and of their families worldwide. However, there is insufficient evidence to understand how different factors (e.g., individual, family, country, children) have impacted on anxiety levels of families and their children with NDCs developed over time. Methods We used data from a global survey assessing the experience of 8043 families and their children with NDCs (mean of age (m) = 13.18 years, 37% female) and their typically developing siblings (m = 12.9 years, 45% female) in combination with data from the European Centre for Disease Prevention and Control, the University of Oxford, and the Central Intelligence Agency (CIA) World Factbook, to create a multilevel data set. Using stepwise multilevel modelling, we generated child-, family- and country-related factors that may have contributed to the anxiety levels of children with NDCs, their siblings if they had any, and their parents. All data were reported by parents. Results Our results suggest that parental anxiety was best explained by family-related factors such as concerns about COVID-19 and illness. Children’s anxiety was best explained by child-related factors such as children’s concerns about loss of routine, family conflict, and safety in general, as well as concerns about COVID-19. In addition, anxiety levels were linked to the presence of pre-existing anxiety conditions for both children with NDCs and their parents. Conclusions The present study shows that across the globe there was a raise in anxiety levels for both parents and their children with NDCs because of COVID-19 and that country-level factors had little or no impact on explaining differences in this increase, once family and child factors were considered. Our findings also highlight that certain groups of children with NDCs were at higher risk for anxiety than others and had specific concerns. Together, these results show that anxiety of families and their children with NDCs during the COVID-19 pandemic were predicted by very specific concerns and worries which inform the development of future toolkits and policy. Future studies should investigate how country factors can play a protective role during future crises.en
dc.description.provenanceMade available in DSpace on 2025-10-24T12:17:08Z (GMT). No. of bitstreams: 1 Anxiety, concerns and COVID-19.pdf: 3036826 bytes, checksum: 8a6103922c25dfea26a26aba3a7b5192 (MD5) Previous issue date: 2023-07-28en
dc.description.versionversión publicada
dc.identifier.citationSideropoulos V, Van Herwegen J, Meuleman B, Alessandri M, Alnemary FM, Rad JA, Lavenex PAB, Bolshakov N, Bölte S, Buffle P, Cai RY, Campos R, Chirita-Emandi A, Costa AP, Costanzo F, Des Portes V, Dukes D, Faivre L, Famelart N, Fisher MH, Gamaiunova L, Giannadou A, Gupta R, Hardan AY, Houdayer-Robert F, Hrncirova L, Iaochite RT, Jariabkova K, Klein-Tasman BP, Lavenex P, Malik S, Mari F, Martínez-Castilla P, Menghini D, Nuske HJ, Palikara O, Papon A, Pegg RS, Pouretemad H, Poustka L, Prosetzky I, Renieri A, Rhodes SM, Riby DM, Rossi M, Sadeghi S, Su X, Tai C, Tran M, Tynan F, Uljarević M, Van Hecke AV, Veiga G, Verloes A, Vicari S, Werneck-Rohrer SG, Zander E,& Samson AC. (2023). Anxiety, concerns and COVID-19: Cross-country perspectives from families and individuals with neurodevelopmental conditions. Journal of Global Health, 13, 04081. https://doi.org/10.7189/jogh.13.04081
dc.identifier.doihttps://doi.org/10.7189/jogh.13.04081
dc.identifier.issn2047-2986
dc.identifier.urihttps://hdl.handle.net/20.500.14468/30609
dc.journal.titleJournal of Global Health
dc.journal.volume13
dc.language.isoen
dc.publisherInternational Society of Global Health
dc.relation.centerFacultad de Psicología
dc.relation.departmentPsicología Evolutiva y de la Educación
dc.relation.projectidinfo:eu-repo/grantAgreement/MSC//04%2F2639/ES/ESTABLECIMIENTO DE UN BANCO DE ADN PARA EL ANALISIS GENETICO DE ENFERMEDADES NEURODEGENERATIVAS/
dc.relation.projectidinfo:eu-repo/grantAgreement/Schweizerischer Nationalfonds zur Förderung der Wissenschaftlichen Forschung//PP00P1_176722
dc.rightsinfo:eu-repo/semantics/openAccess
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/deed.es
dc.subject6102.01 Psicología evolutiva
dc.subject6104 Psicopedagogía
dc.titleAnxiety, concerns and COVID-19: Cross-country perspectives from families and individuals with neurodevelopmental conditionsen
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dc.typejournal articleen
dspace.entity.typePublication
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relation.isAuthorOfPublication.latestForDiscovery8af55ee5-ea37-48ff-8243-9723df7f3e22
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